I’m Gaby Luna. your New England District Manager and MA Hub Leader. I was born and raised in New Jersey, but now live in Massachusetts.
I am a consumer advocate for an infusion company and caregiver to a fun and wild boy who was born with Vanishing Gastroschisis in September of 2016. I registered for support with AAGF the day I found out at 20 weeks that my son had Gastroschisis. After he was born I kept to myself . I have always been a person to do everything on my own. I don’t like seeking out help/support. As the months passed my son was still in the NICU and not ready to be discharged anytime soon. I transferred his care to a specialized hospital . It was that day that AAGF reached out to me asking what was going on , if I needed any thing, if everything was okay and how could they help. This time I took the support that I did need.The next day there I was sitting in a hospital I had never been in, in a city I had never been in , talking to another “gastro mom ” thanks to AAGF. After this I knew I wanted to be part of this organization . I wanted to make someone feel how that mom made me feel .I no longer felt alone. After this the support kept coming and coming and it was a great feeling to be able to talk to families who understood everything we were going through and what was to come.
I am now honored to serve Avery’s Angels and help bring awareness and support to other Gastroschisis families as well as raise money to help find the answers to why this birth defect happens and how to prevent it.