REGIONAL CONTACTS

Find a local support Hub near you and your regions birth statistics. To volunteer, or create a local Hub in your area, and register as a Hub Volunteer.

An Area Contact is a senior volunteer with us who has had substantial experience providing parent support and is familiar with the medical system in the state.

Hub Leaders are responsible for organizing local support for families and those affected by gastroschisis. They’re responsible for fundraising and promoting community awareness of the defect. Hub leaders are active in making sure their local government knows of the needs of those affected by gastroschisis. They partner with local medical institutions to promote their efforts with the disease and to help supplement their support for affected patients and families. Hub leaders are responsible for organizing a July 30th Awareness Day event for local families to find fellowship and promote community awareness.

 

ALABAMA

Cecilia Bentley

Hub Leader

[email protected]

My name is Cecilia Bentley and I am a mommy to a gastroschisis princess. At my 20 week ultrasound, I was so excited to find out if we were having a boy or girl but before they told us the gender they told us she had gastroschisis. I was very scared but luckily found Avery’s Angels the same day and they have been such a wonderful support group from the very start. more…

 

CALIFORNIA

Analeise GuildAnaleise Guild

Northern CA Hub Leader, Support Coordinator
[email protected] 

My start with gastroschisis began very different than most. I had never heard the word gastroschisis until my daughter was 18 months old. This is because my daughter was adopted. more… 

 

Jennifer Gonzalez

Hub Leader

[email protected]

Hello, I am Jennifer Gonzalez. I am a wife and mother of two beautiful boys, ages 5 years and 3 months old. I never knew what gastroschisis was until I went for an ultrasound and soon after our world changed. I was told my son would be born with gastroschisis. more…  

 

COLORADO 

Liz TuckLiz Tuck

Hub Leader
[email protected] 

My name is Elizabeth “Liz” Tuck living on the Western Slope of Colorado on our small farm living life post military. Our gastroschisis journey began May 13, 2015.  After three very normal pregnancies, we decided our fourth (a rainbow baby) would be born at home with a skilled midwife team.  more… 

GEORGIA

Rebecca Plaza

Hub Leader
[email protected] 

Hey everyone! My name is Rebecca Plaza. I am originally from South Carolina. The Army took me all over the world and now I am here in the great state of Georgia.  I am a veteran, full-time student, wife and mother. My Gastro warrior and only child is Robby! more…

 

ILLINOIS

Cassandra Taylor

Hub Leader

[email protected] 

My name is Cassandra and I’m the new Illinois Hub Leader. My son Lealand who is 4 1/2 years old was born with Gastroschisis. Lealand was born with vanishing Gastroschisis and when he was born he needed over 80% of his small intestines removed due to them being dead. Lealand is an extremely happy boy and absolutely loves every stranger he meets. more…

 

INDIANA 

Sara Cain

Hub Leader
[email protected] 

My name is Sara Cain and I am from Indianapolis. I am a mommy to a Gastroschisis prince. My gastro warrior is Cole. The day I delivered Cole was a joyous day. His father and I were so excited to welcome our first child into this world. We had everything ready to spend the next three days in the hospital. more… 

KANSAS

JorDawn Ramirez

Hub Leader

[email protected]

My journey began in 2017 when my 3rd daughter was diagnosed with Gastroschisis during a gender reveal sonogram. I had no idea that my life would be forever changed that day. I went through the rest of my pregnancy feeling alone, terrified, and nervous for the unknown future. more…

 

KENTUCKY 

Tonya Miller

Hub Leader
[email protected] 

My name is Tonya Miller.  I am married and a mother of an 10 yr. old gastroschisis princess. We live in Western Kentucky.  I first heard the word gastroschisis the night my daughter was born. We didn’t know until she was born that she had gastroschisis. more… 

 

 

MASSACHUSETTS

Gaby Luna

Hub Leader

[email protected] 

Hi ! I’m Gaby Luna your MA Hub Leader. I was born and raised in NJ but now live in this wonderful city, East Boston. I have a degree in Small Business Management & Pastry Arts Management . I am looking to continue my education and become a Nurse Practitioner. more…  

 

 

Christine Casanova

Co-Hub Leader
[email protected] 

It’s an honor to be the Co-Hub of Massachusetts! I love connecting with other families, learning more, and spreading awareness about Gastroschisis. My Gastroschisis Warrior will be 2 soon, and we’ve had quite the adventure! I’m so grateful for the connections and support I’ve received through Avery’s Angels. more… 

 

MICHIGAN

Brea Muir

Hub Leader

[email protected] 

Hi, I’m Brea Muir. I’m a cosmetologist and a first time mom to a Gastroschisis warrior. My little guy’s name is Rowan. My husband Ryan and I found out that we were expecting while living in Washington state. In the beginning of my second trimester, we found out that Rowan would be born with gastroschisis. more… 

 

Cally Chatman

Hub Leader
[email protected]

My name is Cally Chatman, I am mom to two boys! My second,Ezra, is my gastroschisis baby. We found out Ezra was going to be born with Gastroschisis shortly after our 16 week ultrasound. During my pregnancy I had some issues but after some tests and with an extra close eye on our baby everything was fine. more… 

MINNESOTA

Becky Scharpen

Hub Leader

[email protected]

Our youngest daughter, Avacyn, is our gastroschisis warrior.  She has been both a blessing and a challenge! My pregnancy with her started out similar to my other 3, lots of nausea and fatigue in the beginning, nothing out of the ordinary.   On July 29, 2017, I went in for a 20 week ultrasound, hoping to find out the gender of our baby. more…

 

MISSISSIPPI 

Christie Adair

Hub Leader
[email protected] 

My name is Christie. I have been married to my husband since 2007. We have two daughters: Alexis and Skylar. 
December 27, 2013 I was 17 weeks pregnant with Skylar and it was the first time that I had ever 
heard of Gastroschisis. more… 

 

NEBRASKA 

Carleen Vest Light

Hub Leader
[email protected] 

My name is Carleen and our Gastroschisis journey started in March of 2004, our daughter arrived at the end of July 2004 at 34 weeks. After spending 60 days in the hospital my husband and I bought our daughter home 1 day after our first wedding anniversary. more… 

 

NEW JERSEY 

Andrea PaganAndrea Pagan

Hub Leader
[email protected] 

November 12, 2013 my husband and I were given the news that our baby had a birth defect.  I was just 12 weeks pregnant when we found out that Sloane had gastroschisis, my life changed forever that day but for the better.  more… 

 

NORTH CAROLINA 

Crystal Printy

Hub Leader
[email protected] 

Hi! I’m Crystal, your NC HUB Leader. As a parent and caregiver  of a Gastroschisis Warrior, I am here to offer my support to you and your family through the trials and triumphs of Gastroschisis life.

Lindsey Buglewicz

Hub Leader

[email protected]

My name is Lindsey Buglewicz and I live on the coast of N.C. My Gastro warrior is named Lydia and is almost 3. I am a military spouse and also a recreational therapist, working full time with disabled active duty Marines and veterans. more…

 

Nikki Billings

Hub Leader
[email protected] 

My name is Nikki Billings and I have been serving as a North Carolina Hub leader for Avery’s Angels since August of 2015. I’m a wife and a mother to two beautiful boys, one of which whose life was taken too soon at just 32 weeks gestation due to the rare defect called Gastroschisis. more… 

Taekierrae Bond

Hub Leader

[email protected] 

Hello everyone! My name is Taekierrae Bond. I currently reside in Eastern North Carolina. I am a mother to an amazing son, middle school teacher, currently in Graduate school, and I coach cheer and soccer at my school. Our Gastroschisis journey begin March 27, 2013 at UNC-Chapel Hill Children’s Hospital. more…

 

OHIO 

Erin Werner

Hub Leader
[email protected] 

My name is Erin Werner.  My son Leo was born on 1/30/14 with complicated gastroschisis.  Not only were his intestines out, but they were not all connected. In all, Leo had seven surgeries and spent 7 months and eleven days in the Cincinnati Children’s NICU. more… 

Harli Blake

Hub Leader

[email protected] 

My name is Harli Blake. I am a wife, and mom to three children; Kamryn, Landri and Truett. My middle daughter Landri, is my gastroschisis princess. She is now a thriving three year old, sassy girl. I have a true passion for people and serving the Lord.  more… 

 

OKLAHOMA

Rebecca Betts-pageRebecca Betts

Hub Leader
[email protected] 

I found out in January of 2011 that I was pregnant with my 2nd child. In March we found out that we were having a daughter, and she  would be born with Gastroschisis. I went home and started to do some research about it, that’s when I came across Avery’s Angels Gastroschisis Foundation.  more… 

 

OREGON 

Pam Barela

Hub Leader
[email protected] 

I am Pam, the HUB leader in Oregon. At the time of my pregnancy with my gastro-warrior I lived in Astoria, Oregon. My introduction to Gastroschisis came after an ultrasound at 17 weeks. In 2006 gender ultrasounds were done at 20 weeks or later, but I was headed out on a family vacation and I was hoping to get a sneak peak of our little one to share with my parents. more…  

 

Tiffany GoldaderTiffany Goldader

Area Contact
[email protected]averysangels.org 

My name is Tiffany. I am 28 years old, and a full time mom and wife. Having support, whether locally or across the world, is a key way we help people experiencing gastroschisis. more…

 

RHODE ISLAND 

Alexandra Snow

Hub Leader
[email protected] 

My name is Alexandra Snow. I am 22 years old and I live in West Greenwich, Rhode Island. I am a wife and a mommy of two beautiful boys, ages 2 years old and 11 months. Our gastroschisis journey began December 27th, 2017 when I got called in to the hospital for an ultrasound to confirm suspicion of the birth defect Gastroschisis. more…

 

TENNESSEESarah Parker

Sarah Parker

Hub Leader
[email protected] 

Sarah Parker’s son, Rowan, was born with Gastroschisis in June of 2009. He was born at 32 weeks and suffered a loss of 75% of his small intestines, leaving him with Short Bowel Syndrome.  more… 

Ashlee Wagoner

Hub Leader

[email protected] 

My name is Ashlee Wagoner.  I’m a new stay at home mom, after years of working in the corporate world.  I am a wife to an amazing husband, Brad, a mom to an incredible gastroschisis warrior, Madison, a Type 1 Diabetic, and just trying to navigate this new life! more…

 

TEXAS

Brittany IshamBrittany Isham

Hub Leader
[email protected] 

My name is Brittany Isham. I was 24 years old and 20 weeks pregnant with my second child, Savana, when she was diagnosed with gastroschisis. It was unexpected and I was not at all prepared to deal with my daughter having a birth defect, much less one I knew nothing about. more…  

VIRGINIA

Laurel-Eden Combs

Hub Leader

[email protected] 

Hello! My name is Laurel-Eden Combs and I’m the proud momma of a beautiful Gastro boy named Jackson-Lee! At 15 weeks gestation I went to the doctor for an appointment and found out that my son had Gastroschisis. more…  

 

WASHINGTON

Carissa ShoemakerCarissa Shoemaker

Hub Leader
[email protected] 

I am a full time working mama to 3 big girls Jaelyn, Khloe, and Liyah, our gastroschisis angel Emersyn, and our rainbow baby due in April 2015. Our Journey with gastroschisis has been a rough one. Emersyn had a very severe case with multiple organs out and no abdominal wall to put anything back in. more…  

 

Christine Snow

Co-Hub Leader
[email protected] 

My journey began in 2017. I found out I was having my 3rd baby. I have to admit, I was not very excited as it was not planned. I already had a 20 year old daughter & a 13 year old son. Once I heard that heartbeat; I just knew it was meant to be. At 20 weeks, I was told after an ultrasound that my baby girl had Gastroschisis. more… 

 

WISCONSIN 

Rachelle Coffey

Hub Leader
[email protected] 

My name is Rachelle. I live in Wisconsin with my two beautiful girls and my husband. Although we are originally from West Virginia, our gastroschisis warrior was cared for and had her first surgery at Cincinnati Children’s Hospital. We found out at our 18 week ultrasound that our little girl was indeed a little girl and that she would be born with a birth defect I had never even heard of. more… 

 

AUSTRALIA

Claire Linsay

Hub Leader
[email protected] 

My Gastroschisis journey began with my 12 week ultrasound. I was told “the organs are on the outside, sometimes they’re lazy and make their way in later…come back in 4 weeks time”. Four weeks passed, and the diagnosis was Gastroschisis. Living in Coffs Harbour, a regional town on the mid north coast of New South Wales Australia, our local hospital was not resourced to deliver Gastroschisis babies. more… 

 

CANADA 

Brittany DavidsonBrittany Davidson

Area Contact
For outreach, please contact [email protected] 

Hi I’m Brittany Davidson, Canadian Hub Leader for AAGF. When I became pregnant with my daughter Emrie who was born with Gastroschisis, I felt so lost and alone. Avery’s Angels and everyone I met within it became a huge part of my life and my biggest support system. more… 

 

CROATIA

Margareta Lovkovic

Hub Leader
[email protected] 

My name is Margareta and my gastro warrior is Antonija. We live in Croatia, a small country in Europe. Our gastroschisis story begins with Antonija’s birth on September 28th 2014. She was full term and born via induction because she was breech. I had 11 UZV scans during pregnancy, but her gastroschisis remained undetected until she was born. more… 

 

SOUTH AFRICA

Jennifer Barnardo

Jennifer BarnardoArea Contact

For outreach, please contact [email protected] 

My name is Jennifer Barnardo. I’m 28 years old, living in South Africa. I’ve been married for 10 years and am a mother of a Gastroschisis/Cerebral Palsy warrior named Owen Michael.  I have a high energy drive in every aspect of the work environment and am a natural people person. more…