Find a local support Hub near you and your regions birth statistics. To volunteer, or create a local Hub in your area, and register as a Hub Volunteer.

An Area Contact is a senior volunteer with us who has had substantial experience providing parent support and is familiar with the medical system in the state.

Hub Leaders are responsible for organizing local support for families and those affected by gastroschisis. They’re responsible for fundraising and promoting community awareness of the defect. Hub leaders are active in making sure their local government knows of the needs of those affected by gastroschisis. They partner with local medical institutions to promote their efforts with the disease and to help supplement their support for affected patients and families. Hub leaders are responsible for organizing a July 30th Awareness Day event for local families to find fellowship and promote community awareness.

Alabama

Cecilia Bentley

Hub Leader

[email protected]

My name is Cecilia Bentley and I am a mommy to a gastroschisis princess. At my 20 week ultrasound, I was so excited to find out if we were having a boy or girl but before they told us the gender they told us she had gastroschisis. I was very scared but luckily found Avery’s Angels the same day and they have been such a wonderful support group from the very start. more…

Arizona

Victoria Hansenvictoria-hansen

Hub Leader

[email protected]

My name is Victoria Hansen and I’m the full time mommy of two beautiful children. My gastro warrior is named Konnor, and he’s my absolute blessing! I found out I was pregnant at the age of 19 and just like any other mom, I loved him from the start and couldn’t imagine that anything had been wrong. more…

California

Analeise GuildAnaleise Guild

Northern CA Hub Leader, Support Coordinator

[email protected]

My start with gastroschisis began very different than most. I had never heard the word gastroschisis until my daughter was 18 months old. This is because my daughter was adopted. more…

Jennifer GonzalezJennifer Gonzalez

Hub Leader

[email protected]

Hello, I am Jennifer Gonzalez and I currently live in Pensacola, Florida. I am a wife and mother of two beautiful boys, ages 5 years and 3 months old. I never knew what gastroschisis was until I went for an ultrasound and soon after our world changed. I was told my son would be born with gastroschisis. more…

Colorado

Liz TuckLiz Tuck

Hub Leader

[email protected]

My name is Elizabeth “Liz” Tuck living on the Western Slope of Colorado on our small farm living life post military. Our gastroschisis journey began May 13, 2015.  After three very normal pregnancies, we decided our fourth (a rainbow baby) would be born at home with a skilled midwife team.  more…

Georgia

Terrill Coleman

Hub Leader

[email protected]

Hi! My name is Terrill, I live in Savannah Georgia and I am a teacher by trade and a mom to two boys Jackson, 8, and our Gastroschisis warrior Silas who is 3. We found out at 15 weeks that “something wasn’t right” more…

Indiana

Sara Cain

Hub Leader

[email protected]

My name is Sara Cain and I am from Indianapolis. I am a mommy to a Gastroschisis prince. My gastro warrior is Cole. The day I delivered Cole was a joyous day. His father and I were so excited to welcome our first child into this world. We had everything ready to spend the next three days in the hospital. more…

Kentucky

Tonya Miller

Hub Leader

[email protected]

My name is Tonya Miller.  I am married and a mother of an 10 yr. old gastroschisis princess. We live in Western Kentucky.  I first heard the word gastroschisis the night my daughter was born. We didn’t know until she was born that she had gastroschisis. more…

Raelene Kelly

Co-Hub Leader

[email protected]

My name is Raelene and I live in Corbin, Kentucky. I am a marrie mother to three beautiful boys, one of which is my own belly button super hero. My son was born at 34 weeks and 6 days due to lack of movements and good heart changes. more…

Louisiana

Emily LaVergne

Hub Leader

[email protected]

I am Emily LaVergne, a high school English teacher and mother of three, and my Gastro Warrior is my first-born son, Lane Avery. In 2010, Lane was diagnosed with Gastroschisis at 18 weeks when an amniotic fluid scan came back abnormal. more…

Massachusetts

Gaby Luna

Hub Leader

[email protected]

Hi ! I’m Gaby Luna your MA Hub Leader. I was born and raised in NJ but now live in this wonderful city, East Boston. I have a degree in Small Business Management & Pastry Arts Management . I am looking to continue my education and become a Nurse Practitioner. more…

Christine Casanova

Co-Hub Leader

[email protected]

It’s an honor to be the Co-Hub of Massachusetts! I love connecting with other families, learning more, and spreading awareness about Gastroschisis. My Gastroschisis Warrior will be 2 soon, and we’ve had quite the adventure! I’m so grateful for the connections and support I’ve received through Avery’s Angels. more…

Michigan

Tanya Parrish

Hub Leader

[email protected]

Hi! My name is Tanya Parrish, I live in Southeast Michigan. My gastroschisis journey starts at birth…I was born in 1980…what was supposed to be a healthy and exciting birth quickly turned to panic. I was rushed from the hospital I was born in to U of M in Ann Arbor where I had surgery to replace my small and large intestines and stomach. more…

Mississippi

Amy Partridge

Hub Leader

[email protected]

Amy is from Madison, Mississippi. She is an Executive Assistant for a real estate team located in Madison and handles some social media management. Amy is also a singer/songwriter with a blog, Out of Amy’s Eyes, where she encourages others to pursue their dreams. more…

Missouri

unnamedAmber Delauder

Hub Leader

[email protected]

My name is Amber Dela­uder. I was introduced in 2016 to G­astroschisis through ­my step son Austin, he­ was born with gastroschisis in ­2008. I also have 4 other children. Now I am enthusiastic to help spread Gastroschisis ­awareness to everyone. more…

Michael Myers

Co-Hub Leader

[email protected]

My name is Michael and my son Austin was born with Gastroschisis in 2008, in Springfield, Missouri. He was in the NICU for almost 30 days. I’m located in central Missouri along I44. more…

Nebraska

Carleen Vest Light

Hub Leader

[email protected]

My name is Carleen and our Gastroschisis journey started in March of 2004, our daughter arrived at the end of July 2004 at 34 weeks. After spending 60 days in the hospital my husband and I bought our daughter home 1 day after our first wedding anniversary. more…

New Jersey

Andrea PaganAndrea Pagan

Hub Leader

[email protected]

November 12, 2013 my husband and I were given the news that our baby had a birth defect.  I was just 12 weeks pregnant when we found out that Sloane had gastroschisis, my life changed forever that day but for the better.  more…

North Carolina

Crystal Printy

Hub Leader

[email protected]

Hi! I’m Crystal, your NC HUB Leader. As a parent and caregiver  of a Gastroschisis Warrior, I am here to offer my support to you and your family through the trials and triumphs of Gastroschisis life.

Nikki Billings

Hub Leader

[email protected]

My name is Nikki Billings and I am 22 years old. I’m married to the sweetest man of my dreams; his name is Dylan. I am currently attending Strayer University Online working towards my bachelors in Business Administration. more…

Ohio

Erin Werner

Hub Leader

[email protected]

My name is Erin Werner.  My son Leo was born on 1/30/14 with complicated gastroschisis.  Not only were his intestines out, but they were not all connected. In all, Leo had seven surgeries and spent 7 months and eleven days in the Cincinnati Children’s NICU. more…

Oklahoma

Rebecca Betts-pageRebecca Betts

Hub Leader

[email protected]

I found out in January of 2011 that I was pregnant with my 2nd child. In March we found out that we were having a daughter, and she  would be born with Gastroschisis. I went home and started to do some research about it, that’s when I came across Avery’s Angels Gastroschisis Foundation.  more…

Oregon

Pam Barela

Hub Leader

[email protected]

I am Pam, the HUB leader in Oregon. At the time of my pregnancy with my gastro-warrior I lived in Astoria, Oregon. My introduction to Gastroschisis came after an ultrasound at 17 weeks. In 2006 gender ultrasounds were done at 20 weeks or later, but I was headed out on a family vacation and I was hoping to get a sneak peak of our little one to share with my parents. more…

Tiffany GoldaderTiffany Goldader

Area Contact

[email protected]averysangels.org

My name is Tiffany. I am 28 years old, and a full time mom and wife. Having support, whether locally or across the world, is a key way we help people experiencing gastroschisis. more…

Pennsylvania

Toni ChesterToni Chester

Area Contact

[email protected]

Hi, my name is Toni and I am a proud mommy to two adorable toddlers. My oldest sons name is Lucas and he was born January 2012. My baby Wyatt was born April 2013 and he is our Gastroschisis Warrior. more…

Tennessee

Sarah Parker

Sarah Parker

Hub Leader

[email protected]

Sarah Parker’s son, Rowan, was born with Gastroschisis in June of 2009. He was born at 32 weeks and suffered a loss of 75% of his small intestines, leaving him with Short Bowel Syndrome.  more…

Texas

Brittany IshamBrittany Isham

Hub Leader

[email protected]

My name is Brittany Isham. I was 24 years old and 20 weeks pregnant with my second child, Savana, when she was diagnosed with gastroschisis. It was unexpected and I was not at all prepared to deal with my daughter having a birth defect, much less one I knew nothing about. more…

Sarah Estrada

Sarah EstradaCo-Coordinator

[email protected]

My name is Sarah Estrada and I have a sweet little boy that was born with gastroschisis. At our 22-week sonogram, we were excited to find out his gender, but were shocked only seconds later that he would be born with the defect and to expect a long NICU stay. more…

Washington

Carissa ShoemakerCarissa Shoemaker

Hub Leader

[email protected]

I am a full time working mama to 3 big girls Jaelyn, Khloe, and Liyah, our gastroschisis angel Emersyn, and our rainbow baby due in April 2015. Our Journey with gastroschisis has been a rough one. Emersyn had a very severe case with multiple organs out and no abdominal wall to put anything back in. more…

Linda Smith

Co-Hub Leader

[email protected]

Hi, my name is Linda Smith and I am a Gastroschisis Survivor. My mother found out at 12 weeks I would be born with the defect after it was confirmed by a specialist at the Children’s and Women’s Hospital in Mobile, Alabama. more…

Wisconsin

Rachelle Coffey

Hub Leader

[email protected]

My name is Rachelle. I live in Wisconsin with my two beautiful girls and my husband. Although we are originally from West Virginia, our gastroschisis warrior was cared for and had her first surgery at Cincinnati Children’s Hospital. We found out at our 18 week ultrasound that our little girl was indeed a little girl and that she would be born with a birth defect I had never even heard of. more…

Canada

Brittany DavidsonBrittany Davidson

Area Contact

For outreach, please contact [email protected]

Hi I’m Brittany Davidson, Canadian Hub Leader for AAGF. When I became pregnant with my daughter Emrie who was born with Gastroschisis, I felt so lost and alone. Avery’s Angels and everyone I met within it became a huge part of my life and my biggest support system. more…

South Africa

Jennifer Barnardo

Jennifer BarnardoArea Contact

For outreach, please contact [email protected]

My name is Jennifer Barnardo. I’m 28 years old, living in South Africa. I’ve been married for 10 years and am a mother of a Gastroschisis/Cerebral Palsy warrior named Owen Michael.  I have a high energy drive in every aspect of the work environment and am a natural people person. more…