REGIONAL CONTACTS

Find a local support Hub near you and your regions birth statistics. To volunteer, or create a local Hub in your area, and register as a Hub Volunteer.

An Area Contact is a senior volunteer with us who has had substantial experience providing parent support and is familiar with the medical system in the state.

Hub Leaders are responsible for organizing local support for families and those affected by gastroschisis. They’re responsible for fundraising and promoting community awareness of the defect. Hub leaders are active in making sure their local government knows of the needs of those affected by gastroschisis. They partner with local medical institutions to promote their efforts with the disease and to help supplement their support for affected patients and families. Hub leaders are responsible for organizing a July 30th Awareness Day event for local families to find fellowship and promote community awareness.

 

CALIFORNIA

Analeise GuildAnaleise Guild

Northern CA Hub Leader, Support Coordinator
[email protected] 

My start with gastroschisis began very different than most. I had never heard the word gastroschisis until my daughter was 18 months old. This is because my daughter was adopted. more… 

 

COLORADO 

Liz TuckLiz Tuck

Hub Leader
[email protected] 

My name is Elizabeth “Liz” Tuck living on the Western Slope of Colorado on our small farm living life post military. Our gastroschisis journey began May 13, 2015.  After three very normal pregnancies, we decided our fourth (a rainbow baby) would be born at home with a skilled midwife team.  more… 

ILLINOIS

Cassandra Taylor

Hub Leader

[email protected] 

My name is Cassandra and I’m the new Illinois Hub Leader. My son Lealand who is 4 1/2 years old was born with Gastroschisis. Lealand was born with vanishing Gastroschisis and when he was born he needed over 80% of his small intestines removed due to them being dead. Lealand is an extremely happy boy and absolutely loves every stranger he meets. more…

 

INDIANA 

Sara Cain

Hub Leader
[email protected] 

My name is Sara Cain and I am from Indianapolis. I am a mommy to a Gastroschisis prince. My gastro warrior is Cole. The day I delivered Cole was a joyous day. His father and I were so excited to welcome our first child into this world. We had everything ready to spend the next three days in the hospital. more… 

KANSAS

JorDawn Ramirez

Hub Leader

[email protected]

My journey began in 2017 when my 3rd daughter was diagnosed with Gastroschisis during a gender reveal sonogram. I had no idea that my life would be forever changed that day. I went through the rest of my pregnancy feeling alone, terrified, and nervous for the unknown future. more…

 

MASSACHUSETTS

Gaby Luna

Hub Leader

[email protected] 

I’m Gaby Luna. your New England District Manager and MA Hub Leader. I was born and raised in New Jersey, but now live in Massachusetts. I am a consumer advocate for an infusion company and caregiver to a fun and wild boy who was born with Vanishing Gastroschisis in September of 2016. more…  

 

 

Christine Casanova

Co-Hub Leader
[email protected] 

It’s an honor to be the Co-Hub of Massachusetts! I love connecting with other families, learning more, and spreading awareness about Gastroschisis. My Gastroschisis Warrior will be 2 soon, and we’ve had quite the adventure! I’m so grateful for the connections and support I’ve received through Avery’s Angels. more… 

 

MICHIGAN

Cally Chatman

Hub Leader
[email protected]

My name is Cally Chatman, I am mom to two boys! My second,Ezra, is my gastroschisis baby. We found out Ezra was going to be born with Gastroschisis shortly after our 16 week ultrasound. During my pregnancy I had some issues but after some tests and with an extra close eye on our baby everything was fine. more… 

Gracie Jordan

Hub Leader

[email protected]

Hi, my name is Gracie Jordan.  I am currently enrolled in college and working towards my associates degree in Criminal Justice. I  became a mother at the age of 17, in November of 2018 when my daughter Josephina was born. Becoming a mother so young was hard, but adding on my daughter’s diagnosis was even harder. more…

Lacey Brown

Hub Leader

[email protected]

Hello! My name is Lacey. Our Gastroschisis journey began when I was just 11 weeks pregnant with my son, Jack. Like most, we knew nothing about Gastroschisis and immediately began to do research on exactly what it was our little guy was dealing with and what we could expect as new parents. It was during this time I found Avery’s Angels. more…

 

MISSISSIPPI 

Christie Adair

Hub Leader
[email protected] 

My name is Christie. I have been married to my husband since 2007. We have two daughters: Alexis and Skylar. 
December 27, 2013 I was 17 weeks pregnant with Skylar and it was the first time that I had ever 
heard of Gastroschisis. more… 

 

Skylar Roberts

Co-Hub Leader

[email protected]

I’m Skylar and it’s my pleasure to be a Mississippi Co-Hub Leader. I’m currently finishing up a degree in Psychology and then pursuing a career in nursing. My eldest daughter is medically complex. Her primary diagnosis is Ultra Short Gut Syndrome aka SBS.  more…

 

NEBRASKA 

Carleen Vest Light

Hub Leader
[email protected] 

My name is Carleen and our Gastroschisis journey started in March of 2004, our daughter arrived at the end of July 2004 at 34 weeks. After spending 60 days in the hospital my husband and I bought our daughter home 1 day after our first wedding anniversary. more… 

 

NEW JERSEY 

Andrea PaganAndrea Pagan

Hub Leader
[email protected] 

November 12, 2013 my husband and I were given the news that our baby had a birth defect.  I was just 12 weeks pregnant when we found out that Sloane had gastroschisis, my life changed forever that day but for the better.  more… 

 

NORTH CAROLINA 

Lindsey Buglewicz

Hub Leader

[email protected]

My name is Lindsey Buglewicz and I live on the coast of N.C. My Gastro warrior is named Lydia and is almost 3. I am a military spouse and also a recreational therapist, working full time with disabled active duty Marines and veterans. more…

 

Nikki Billings

Hub Leader
[email protected] 

My name is Nikki Billings and I have been serving as a North Carolina Hub leader for Avery’s Angels since August of 2015. I’m a wife and a mother to two beautiful boys, one of which whose life was taken too soon at just 32 weeks gestation due to the rare defect called Gastroschisis. more… 

Erin Ingenito

Hub Leader

[email protected]

My name is Erin Ingenito. I have been a dental assistant for 22 years now and I am a mother to my 23 year old daughter Brenna, and a nan to my Remington. Our gastroschisis journey began when my daughter was about 18 weeks pregnant. I’ll never forget that day she called my hysterical crying, I felt helpless as I was in NC and she was in TN going to school! more…

 

OHIO 

Erin Werner

Hub Leader
[email protected] 

My name is Erin Werner.  My son Leo was born on 1/30/14 with complicated gastroschisis.  Not only were his intestines out, but they were not all connected. In all, Leo had seven surgeries and spent 7 months and eleven days in the Cincinnati Children’s NICU. more…

 

OREGON 

Pam Barela

Hub Leader
[email protected] 

I’m Pam, the Hub Leader in Oregon and Southwest District Manager. My introduction to Gastroschisis came after an ultrasound at 17 weeks. In 2006 gender ultrasounds were done at 20 weeks or later, but I was headed out on a family vacation and I was hoping to get a sneak peak of our little one to share with my parents.  more…  

 

Tiffany GoldaderTiffany Goldader

Area Contact
[email protected]averysangels.org 

My name is Tiffany. I am 28 years old, and a full time mom and wife. Having support, whether locally or across the world, is a key way we help people experiencing gastroschisis. more…

 

RHODE ISLAND 

Alexandra Snow

Hub Leader
[email protected] 

My name is Alexandra Snow. I am 22 years old and I live in West Greenwich, Rhode Island. I am a wife and a mommy of two beautiful boys, ages 2 years old and 11 months. Our gastroschisis journey began December 27th, 2017 when I got called in to the hospital for an ultrasound to confirm suspicion of the birth defect Gastroschisis. more…

 

TENNESSEE

Ashlee Wagoner

Hub Leader

[email protected] 

My name is Ashlee Wagoner.  I’m a new stay at home mom, after years of working in the corporate world.  I am a wife to an amazing husband, Brad, a mom to an incredible gastroschisis warrior, Madison, a Type 1 Diabetic, and just trying to navigate this new life! more…

 

TEXAS

Brittany IshamBrittany Isham

Hub Leader
[email protected] 

My name is Brittany Isham. I was 24 years old and 20 weeks pregnant with my second child, Savana, when she was diagnosed with gastroschisis. It was unexpected and I was not at all prepared to deal with my daughter having a birth defect, much less one I knew nothing about. more…  

VIRGINIA

Laurel-Eden Combs

Hub Leader

[email protected] 

Hello! My name is Laurel-Eden Combs and I’m the proud momma of a beautiful Gastro boy named Jackson-Lee! At 15 weeks gestation I went to the doctor for an appointment and found out that my son had Gastroschisis. more…  

 

WASHINGTON


Christine Fowler

Hub Leader
[email protected] 

My journey began in 2017. I found out I was having my 3rd baby. I have to admit, I was not very excited as it was not planned. I already had a 20 year old daughter & a 13 year old son. Once I heard that heartbeat; I just knew it was meant to be. At 20 weeks, I was told after an ultrasound that my baby girl had Gastroschisis. more…  

 

CANADA 

Megan Dieno

Hub Leader

[email protected]

My name is Megan, I’m from Regina, Saskatchewan and I am so excited to be a Hub leader for Avery’s Angels. My son was born Dec 30, 2016, I can’t tell you enough how ill prepared everyone including the hospital was for how bad our sons condition would be at birth. more…

 

CROATIA

Margareta Lovkovic

Hub Leader
[email protected] 

My name is Margareta and my gastro warrior is Antonija. We live in Croatia, a small country in Europe. Our gastroschisis story begins with Antonija’s birth on September 28th 2014. She was full term and born via induction because she was breech. I had 11 UZV scans during pregnancy, but her gastroschisis remained undetected until she was born. more… 

 

UNITED KINGDOM

Abbie Taylor

Hub Leader

[email protected]

Hi, my name is Abbie, I am from the UK and I am a mum to 3 boys, one of which was born with Gastroschisis in May 2016. We found out at our 12 week scan that Kyden’s bowel was outside. We had scans every 2 weeks but as the weeks went by his bowel was dilating fast. At 35+5, the dilation was 39 mm and they decided to induce, but Kyden came naturally on the day of induction. more…