Helpful resources and links are available including national organizations, doctor and clinic locators, medical links, travel and financial assistance, angel support, and more.


Find Your Hospital

Top-Ranked Pediatric Hospitals for Gastroenterology & GI Surgery
Why Choosing the Right Hospital is Important
Centers for Disease Control and Prevention
Federation of State Medical Boards 
MedlinePlus Directory 
American Speech-Language-Hearing Association 
Children’s Hospital Association 
North American Society For Pediatric Gastroenterology, Hepatology and Nutrition

National Organizations

American Red Cross
Baby’s First Test
Easter Seals
GI Kids
International Clearinghouse for Birth Defects
NORD Patient Assistance
National Birth Defects Prevention Network
The Association of Pediatric Gastroenterology and Nutrition Nurses
National Disability Navigator Resource Collaborative
NEC Society

Medical Links

Boston Children’s Hospital
Boston Children’s Center for Advanced Intestinal Rehabilitation
Cincinnati Children’s Intestinal Care Center
Cincinnati Children’s Complex Intestinal Disorders / Intestinal Failure
Seattle Children’s Hospital
Stanford Intestinal Rehabilitation and Transplant Program
Lucile Packard Children’s Hospital Stanford 
Oxford University Hospitals

Short Bowel

Transplant Information and Assistance

TPN/Tube Feedings

The Oley Foundation
Feeding Tube Awareness Foundation

Travel Assistance

Financial Assistance

Helpful Links

Ronald McDonald House Charities
Healthy Children
Rare Disease Foundation
The Global Genes Project
County Health Rankings
Make A Wish America
Marty Lions Foundation
Resources for Premature Infants
Stork Net
Beads of Courage
Tubie Whoobies
MyPreemie App
Shawn’s Anomaly
The Rebecca Foundation’s Cloth Diaper Closet
NICU Central
The Frugal Room – How to Remodel for People with Disabilities
Parents Helping Parents
Birth Defect Research for Children, Inc.
Youth Rally – Support for Kids
Partnership for Parents
United Ostomy Association for America, Inc.
Sibling Support Network 
Build Your Own Care Notebook
Hirschsprung’s & Motility Disorder Support Network (HMDSN)
Public Cord Blood Banking
Be the Match – Donate Cord Blood
Be the Match – How to Donate Cord Blood
Parent’s Guide to Cord Blood Foundation

Help By State

CA – Birth Defects Monitoring
NY – Children’s Aid Society
NC – Birth Defects Surveillance
NC – Family Support Network
NC – UNC Center for Maternal and Infant Health
PA – CHOP Center for Fetal Diagnosis
VA – Edmarc Hospice for Children
WA – Fathers Network



Canadian Association of Gastroenterology
Canadian Association of Paediatric Surgeons
Canadian Digestive Health Foundation

United Kingdom

British Society of Gastroenterology
The Fetal Medicine Centre
Great Ormond Street Hospital for Children
The Ileostomy and Internal Pouch Support Group
First Touch Supporting Babies at St. George’s

AAGF Facebook Pages