Azra Omerovic

Slovenia

Hub Leader

My name is Azra and I am the mother of a gastroschisis warrior Naja.

We found out about her diagnosis at my regular 11 weeks pregnancy check up. We were very lucky to be aware of the condition in such an early phase of the pregnancy. Immediately after that we were signed up for regular weekly check ups in Ljubljana where my pregnancy was monitored until the end. After amniocentesis we found out about the gender and that she doesn’t have any other congenital defects. Right from the start I was sure that I will keep my baby no matter what.

My pregnancy went by without any complications, with weekly ultrasounds which comforted me in a way that I was sure my baby was progressing well. However my doctors decided that I will spend my final month of pregnancy in a hospital just to make sure I am close by the hospital when the labour begins.

1 week before my due date I was induced with artificial contractions. 3 surgeons were already on stand by, waiting for Naja to be born. Right after my baby was delivered she was immediately transferred to the surgery. They had to perform 3 surgeries, she spent 3 days at an intensive care department and then an additional 21 days in the surgical department of Ljubljana’s pediatric hospital. After 24 days from the date she was born, Naja left the hospital as a healthy baby without any complications. Her “funny belly button” is the only indicator that she went through a rough patch right at the beginning of her life.

Naja was born on 6th of January 2020 and she is a living proof that kids with gastroschisis can live completely normal and healthy lives.

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Moje ime je Azra in sem mama deklice Naje, rojene z gastroshizo.

Za njeno diagnozo smo izvedeli na rednem ultrazvocnem pregledu pri 11 tednih nosecnosti. Imeli smo sreco, da smo v ze zelo zgodnji fazi nosecnosti izvedeli za diagnozo s katero se bo rodila.

Takoj po pregledu so nas poslali na tedenske preglede v Ljubljano, kjer je moja nosecnost bila vodena vse do konca.

Po amniocentezi smo izvedeli spol otroka in, da nima na sreco nikakrsnih drugih prirojenih genskih napak. Ze pred prihodom rezultatov z amniocenteze sem bila prepricana, da bom otroka obdrzala ne glede na vse.

Moja nosecnost je potekala brez posebnosti, seveda pa z rednimi tedenskimi ultrazvocnimi pregledi, ki so me pomirjali, da se moja Naja lepo razvija.

Kljub normalni nosecnosti, so se zdravniki odlocili, da zadnji mesec nosecnosti prezivim v bolnisnici. Na ta nacin so zagotovili, da sem blizu, ko se porod zazne (živimo namrec 1 uro stran od porodnisnice Ljubljana).

1 teden pred predvidenim datumom poroda so mi z umetnimi popadki sprozili porod. Trije kirurgi so ze bili v pripravljenosti na Najin prihod.

Takoj po porodu so mojo dojencico odpeljali na operacijo. Kirurgi so izvedli 3 operacije po katerih je 3 dni prezivela na intenzivni negi nato pa de 21 dni na kirurskem oddelku pediatricne bolnisnice Ljubljana. 24 dni po rojstvu je Naja zapustila bolnisnico kot zdrava dojencica brez kakrsnih koli zapletov. Njen »smesen popek« je edini pokazatelj, da je sla cez tezak zacetek, takoj ob svojem prihodu na svet.

Naja se je rodila 6.1.2020 in je zivi dokaz, da otroci rojeni z gastroshizo lahko zivijo popolnoma normalno in zdravo zivljenje.