Adelisa Jancic
Montenegro & Macedonia
Hub Leader
At 16 weeks of pregnancy, we learn about the diagnosis of gastroschisis. Doctors advised abortion. They claimed that the baby would be defective and would not have a quality life. We did genetic tests, long and painful. After 2 months, a cordocentesis report arrived and showed that the baby was genetically healthy. At 31 weeks, Naya was born with her intestines, stomach, liver and right ovary out of her stomach. She was born on October 2nd, 2021 and weighed 1320 grams. They immediately transferred her to the neonatology department, performed tests and placed a silo bag. After 24 days, the doctors put it all back in the abdomen.
There were many sepsis, but she won all the battles. She is now our biggest success. Today she is 8 months old and there are no consequences. I know it’s hard for you to imagine now, but these children survive something that many do not experience throughout their lifetime and it has to be respected.
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U 16. nedelji trudnoce saznajemo za dijagnozu gastroshiza. Doktori su savjetovali prekid trudnoce. Rekli su da ce beba biti sa defektom i da nece imati kvalitetan zivot. Odradili smo genetske pretrage, duge i bolne. Za 2 mjeseca stigao je nalaz kordocenteze da je beba genetski zdrava.
U 31. nedelji rodila se Naya, sa crjevima, zelucem, jetrom i desnim jajnikom van stomaka. To je bilo 2.10.2021. godine. Imala je 1320 grama. Odmah su je prebacili na neonatalogiju, odradili pretrage pa postavili silo-vrecicu. Posle 24 dana sve se to vratilo u stomak.
Bilo je puno sepsi, ali ona se borila i izborila. Ona je nas najveci uspjeh. Danas ima 8 mjeseci i nema nikakvih posledica. Znam da vam je tesko to sad da zamisliti, ali ove bebe prezive sto mnogi ne dozive za celog zivota i to treba da se postuje.
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Vo 16. nedela na bremenosta doznavame za dijagnozata gastroshiza. Doktoriite predlagaja da se prekine bremenosta da bebeto ke se rodi so defekt i deka nema da ima kvaliteten zivot. Napravivme testovi genetski koji traea 2 meseci, stigna rezultatot deka bebeto e genetski zdravo.
Vo 31. nedela so crevata so zeludecot so beliot drob i desniot jajnik nadvor od stomakot se rodi Naya. Toa bese 02.10.2021 godina. Imase samo 1320 grama. Odma bese prefrlena na neonatalogija tamo ja docekaa vrhunski doktori i organite i gi stavija vo plasticna kesa. Taka gi drzese 24 dena posle toa ja operiraa kade sto se toa i go vratia vo stomakot.
Imase mnogu sepsi ali se borese i uspea vo toa. Ona e nas najgolem uspeh. Denes ima 8 meseci i nema nikakvi posledici. Znam deka vi e tesko toa da go zamislite ali ovije bebinja prozivuvaat mnogu povejke sto nekoji ne pomunivaat ni za cel zivot i toa treba da se ceni.