My name is Jordan Bennett and I couldn’t be more humbled to be the Co-Hub Leader for Avery’s Angel’s in West Virginia. My journey with Gastroschisis began in 2007 at 20 weeks with a phone call from my Doctor telling me my unborn daughter would be born with it. We immediately began to research Gastroschisis and although we knew we were facing a tremendous challenge, we were determined to stay positive. On January 15, 2008, at 35 weeks, I went into labor in the midst of a snow storm. After an exciting 2.5 hour ambulance ride to Cabell Huntington Hospital, our precious Taylor Paige was delivered by C-Section. Within 3 hours of birth, Taylor was in surgery, with her large and small intestines and appendix exposed. After preparing for the worst, and praying for the best, we were blessed with amazing news. Taylor’s doctor (Dr. Bonnie Beaver) came to us after surgery to tell us that she was able to place all the exposed organs back inside Taylor with the initial surgery and that she was completely closed. Taylor spent 23 long days in the NICU and was watched over by a wonderful medical
staff and an awesome and all powerful God. We were also fortunate enough to be given a room at the Ronald McDonald House and were able to stay at her side until she came home.
As a result of Gastroschisis, Taylor has faced some other medical challenges. She also had Optic Nerve Hypoplasia and cannot see with her right eye. She also has Kidney Reflux and takes medication daily for that. But in spite of that, all you see today is a normal, healthy 6 year old girl and big sister to her 2 brothers. God blessed my family through our ordeal. At that time, there was no Avery’s Angels to gain support from. Once we became aware of the foundation, I felt led to volunteer and now am honored to represent Avery’s Angels and hope that my experience can inspire hope in people facing this challenge.