Cecilia Bentley

Alabama

Hub Leader

[email protected]

My name is Cecilia Bentley and I am a mommy to a gastroschisis princess. At my 20 week ultrasound, I was so excited to find out if we were having a boy or girl but before they told us the gender they told us she had gastroschisis. I was very scared but luckily found Avery’s Angels the same day and they have been such a wonderful support group from the very start. Around 34 weeks, they informed me that her bowels started dilating and they wanted her to come sooner. I had planned to have an amino but she came on her own before that even happened. She was born on November 16, 2014.

I delivered at the University of Alabama at Birmingham Hospital and she was transferred next door to Children’s of Alabama. They placed a silo on her and pushed more of her intestines back in each day. On the sixth day she had her closure surgery and it went well. She got to began feeds shortly after and did pretty well tolerating them. We had a few struggles like her wound becoming infected and finishing her full feeds but after 30 days she got to come home. She still battles with constipation but has a great GI team at Children’s of Alabama. I am so excited to be apart of Avery’s Angels because I want to help connect families and offer them support through these hard times.