Hi, my name is Abbie, I am from the UK and I am a mum to 3 boys, one of which was born with Gastroschisis in May 2016. We found out at our 12 week scan that Kyden’s bowel was outside. We had scans every 2 weeks but as the weeks went by his bowel was dilating fast. At 35+5, the dilation was 39 mm and they decided to induce, but Kyden came naturally on the day of induction.
I gave birth naturally and then we realized his bowel was only connected into his body by blood vessels. The stomach wall had continued to form in the womb and cut through his bowel. He was born with a total of 90 cm of bowel altogether which had to be cut down to 62 cm. He was in NICU for 12 weeks + 1 day where he had 5 operations to repair the bowel, this included stomas, fistulas, broviac lines etc. Once his feeds began he was doing fantastic. He needed a few blood transfusions along the way but he was ok. We were discharged in August 2016.
He just turned 2 in May 2018 and the day after his birthday he was taken into hospital and into intensive care with internal bleeding from one of the repair joins made in his bowel. Again, ultrasounds, x-rays and blood transfusions later, we were back home with our boy back to normal.
I have followed Avery’s Angels since he was born and I am so honored to be a part of the team and support other families in the way that me and my family didn’t know even existed.