Sarah Parker


Hub Leader

[email protected]

Sarah ParkerSarah Parker’s son, Rowan, was born with Gastroschisis in June of 2009. He was born at 32 weeks and suffered a loss of 75% of his small intestines, leaving him with Short Bowel Syndrome. He spent 10 months at his local hospital, Niswonger Children’s Hospital, and then another 6 weeks at Cincinnati Children’s Hospital in their Intestinal Rehabilitation Program. Rowan survived major bowel loss due to a jejunal atresia, had intestinal dumping, TPN induced cholestasis, liver issues, ostomy bags, gastrostomy tubes, central line issues, and many surgeries. Throughout their Gastroschisis journey, Avery’s Angels Gastroschisis Foundation and their Founder, Meghan Hall, was extremely influential and helped guide the Parkers with support and understanding with such a complicated birth defect. Sarah has been involved with AAGF since March 2010, volunteered with Parent Support since June 2010, and has acted as the TN HUB Coordinator since April 2013. She also acts as the Volunteer Chair for the Family Advisory Council at Niswonger Children’s Hospital. Sarah’s mission is to create Gastroschisis Awareness and to provide support locally and nationally, as well as integrating with the local medical staff to educate families who have a child born with this birth defect. Each year, the TN HUB holds their annual, “Lemonade and Cupcakes in the Park” in Johnson City, TN to help raise Gastroschisis awareness in the Southern Appalachian region. Sarah and her husband, Kenton, have two children. They enjoy boating, traveling and living their lives to the fullest each day.