Pam Barela


Hub Leader

[email protected]

I’m Pam, the Hub Leader in Oregon and Southwest District Manager. My introduction to Gastroschisis came after an ultrasound at 17 weeks. In 2006 gender ultrasounds were done at 20 weeks or later, but I was headed out on a family vacation and I was hoping to get a sneak peak of our little one to share with my parents. I pressed hard and my midwife kept insisting that it was too soon to see anything, but she caved and went for a look. She was trying to get a view of what we needed with no luck and then went on to regular anatomy. When she got silent and told my husband and I that she was going to get one of the doctors for a second opinion we were terrified. The room was silent and the wait for him seemed to take forever. It only took a few minutes for him to explain what we were seeing and that I would need a specialized ultrasound to further diagnose the extent of her case. It took three weeks to get into the specialists. I still remember the stress of those days and trying to remain calm the rest of the pregnancy.

My daughter was born at 35 weeks, received a primary closure after her birth, and stayed in the NICU for two weeks. Today Molly is a happy, healthy young lady that loves her flat belly button, and shows her scar proudly. She loves to talk about how she will never pierce her belly button because she doesn’t have one.