Brea Muir

Michigan

Hub Leader

[email protected]

Hi, I’m Brea Muir. I’m a licensed cosmetologist, full time student, wife and a first time mom to a Gastroschisis warrior. My little guy isn’t the tiny 4 lb baby he once was.  Rowan is now a wild toddler. My husband Ryan and I found out that we were expecting while living in Washington state. In the beginning of my second trimester, we found out that Ro would be born with gastroschisis. So we quickly got our ducks in a row and moved to Michigan to be closer to family.

Everything I had read about gastroschisis was so vague, which I quickly learned it was because every case is vastly different. I needed answers, and I knew I couldn’t of been the only one. I found a Facebook page that directed me to Avery’s Angels Gastroschisis Foundation and from then on I got more support and connections than I could’ve imagined, not just from leadership but also from other registered parents.

On November 9, 2018 I was induced at 35 weeks due to failed NSTs and weak blood flow in the umbilical chord. I delivered Ro at the University of Michigan and after he was born, he was cared for by C. S. Mott Children’s hospital while Ryan and I stayed at the Ronald McDonald House for 1 month.

Since being home with Rowan I’ve had time to reflect on our experience and I don’t think I would’ve made it through if I had continued to be isolated by my son’s diagnosis. So, here I am, ready and eager to give back and provide the same support I received through Avery’s Angels.