Alexandra Snow

Rhode Island

Hub Leader

[email protected]

My name is Alexandra Snow. I am 22 years old and I live in West Greenwich, Rhode Island. I am a wife and a mommy of two beautiful boys, ages 2 years old and 11 months. Our gastroschisis journey began December 27th, 2017 when I got called in to the hospital for an ultrasound to confirm suspicion of the birth defect Gastroschisis. I didnt even know that Gastroschisis existed until this day. I was 16 weeks pregnant with my second born when we had found out. From there on out, every week twice a week I had to go to providence to have his heart rate monitored and to have an ultrasound to make sure he was growing properly. He was due June 7th, 2018 but he came out on his inducement day (all on his own mind you) May 21st, 2018. When he was born, part of his small intestine, part of his large intestine, and part of his stomach was exposed. They were able to push some of it back in, but they still had to put most of his bowel into the silo. Each day, gravity helped pushed his bowel back into his stomach, along with a little help from his surgeon. Then a week and 2 days later he had his closure surgery, and everything went very well. He did have a picc line that gave him all of the nutrients he needed since he wasnt able to eat right away. But not long after, he was able to start feeds and next thing you know he was tolerating his feeds, gaining and holding his weight, and moving his bowels like he was suppose to. He was on the 3rd floor of the NICU at Women and Infants Hospital in Providence, Rhode Island for 29 days total. Since then, he did have to go back to the hospital at 2-3 months old for a partial bowel obstruction due to scar tissue wrapped around part of his bowel, which resulted in 2 weeks of hell and another surgery. But fast forwarding to today, he is a happy 11 month old boy, crawling around, always smiling, always happy, and no complications besides constipation every now and again.

He is the reason why I found Averys Angel’s Gastroschisis Foundation, and he is the reason why I became a Hub Leader. I want everyone to be able to get the support they need and know that they are not alone in this journey. We are just one big family. I am excited to be apart of this amazing, giving foundation.