Find a local support Hub near you and your regions birth statistics. To volunteer, or create a local Hub in your area, and register as a Hub Volunteer.

An Area Contact is a senior volunteer with us who has had substantial experience providing parent support and is familiar with the medical system in the state.

Hub Leaders are responsible for organizing local support for families and those affected by gastroschisis. They’re responsible for fundraising and promoting community awareness of the defect. Hub leaders are active in making sure their local government knows of the needs of those affected by gastroschisis. They partner with local medical institutions to promote their efforts with the disease and to help supplement their support for affected patients and families. Hub leaders are responsible for organizing a July 30th Awareness Day event for local families to find fellowship and promote community awareness.

Alabama

Havilah Sthole

Hub Leader

[email protected]

I am Havilah Sthole, Alabama Hub Leader for AAGF, and I am here for you if you ever need me! Please do not hesitate to send me an email or give me a call. My youngest son was diagnosed with gastroschisis at 24 weeks gestation in 2013, a diagnosis that ignited a passion to increase awareness, offer support, and encourage more research. more…

Brandy Gwinn

Hub Leader

[email protected]

My Gastroschisis story started in early 2014 when my daughter was born with an undiagnosed case of Gastroschisis. I like most had never heard of Gastroschisis but soon after her birth I was contacted by the WV HUB leader at that time through a mutual friend. more…

Arizona

Victoria Hansenvictoria-hansen

Hub Leader

[email protected]

My name is Victoria Hansen and I’m the full time mommy of two beautiful children. My gastro warrior is named Konnor, and he’s my absolute blessing! I found out I was pregnant at the age of 19 and just like any other mom, I loved him from the start and couldn’t imagine that anything had been wrong. more…

California

Analeise GuildAnaleise Guild

Northern CA Hub Leader

[email protected]

My start with gastroschisis began very different than most. I had never heard the word gastroschisis until my daughter was 18 months old. This is because my daughter was adopted. more…

Jennifer GonzalezJennifer Gonzalez

Hub Leader

[email protected]

Hello, I am Jennifer Gonzalez and I currently live in Pensacola, Florida. I am a wife and mother of two beautiful boys, ages 5 years and 3 months old. I never knew what gastroschisis was until I went for an ultrasound and soon after our world changed. I was told my son would be born with gastroschisis. more…

Colorado

Liz TuckLiz Tuck

Hub Leader

[email protected]

My name is Elizabeth “Liz” Tuck living on the Western Slope of Colorado on our small farm living life post military. Our gastroschisis journey began May 13, 2015.  After three very normal pregnancies, we decided our fourth (a rainbow baby) would be born at home with a skilled midwife team.  more…

Georgia

Terrill Coleman

Hub Leader

[email protected]

Hi! My name is Terrill, I live in Savannah Georgia and I am a teacher by trade and a mom to two boys Jackson, 8, and our Gastroschisis warrior Silas who is 3. We found out at 15 weeks that “something wasn’t right” more…

Indiana

Lyndsey CarrollLyndsey Carroll

Hub Leader

[email protected]

My name is Lyndsey Carroll, a mother to two handsome boys, Emmett and Ethan. I am also a stay at home mom, a fiance to a wonderful man, and currently going to school for Criminal Justice – I eventually hope to be a police officer one day. more…

Kentucky

Tonya Miller

Hub Leader

[email protected]

My name is Tonya Miller.  I am married and a mother of an 10 yr. old gastroschisis princess. We live in Western Kentucky.  I first heard the word gastroschisis the night my daughter was born. We didn’t know until she was born that she had gastroschisis. more…

Raelene Kelly

Co-Hub Leader

[email protected]

My name is Raelene and I live in Corbin, Kentucky. I am a marrie mother to three beautiful boys, one of which is my own belly button super hero. My son was born at 34 weeks and 6 days due to lack of movements and good heart changes. more…

Louisiana

Emily LaVergne

Hub Leader

[email protected]

I am Emily LaVergne, a high school English teacher and mother of three, and my Gastro Warrior is my first-born son, Lane Avery. In 2010, Lane was diagnosed with Gastroschisis at 18 weeks when an amniotic fluid scan came back abnormal. more…

Massachusetts

Meghan KinnonMeghan Kinnon

Hub Leader

[email protected]

I was 22 years old when I found out I was pregnant. It was unexpected but we were happy. When I was 13 weeks along I was having severe stomach pains and I was having trouble breathing. We ended up at the emergency room and had to wait 4 hours for an ultrasound. more…

Michigan

_dsc2880Haley Hages

Hub Leader

[email protected]

My name is Haley Hages, I am a Legal Assistant for a local law firm in my area, a wife and mom to two beautiful children, the oldest is a boy his name is Bryce and my youngest is a girl her name is Kylee. Kylee was diagnosed with Gastroschisis January 4th 2016 when I was 18 weeks pregnant. more…

Missouri

unnamedAmber Delauder

Hub Leader

[email protected]

My name is Amber Dela­uder. I was introduced in 2016 to G­astroschisis through ­my step son Austin, he­ was born with gastroschisis in ­2008. I also have 4 other children. Now I am enthusiastic to help spread Gastroschisis ­awareness to everyone. more…

Nebraska

Carleen Vest Light

Hub Leader

[email protected]

My name is Carleen and our Gastroschisis journey started in March of 2004, our daughter arrived at the end of July 2004 at 34 weeks. After spending 60 days in the hospital my husband and I bought our daughter home 1 day after our first wedding anniversary. more…

New Jersey

Andrea PaganAndrea Pagan

Hub Leader

[email protected]

November 12, 2013 my husband and I were given the news that our baby had a birth defect.  I was just 12 weeks pregnant when we found out that Sloane had gastroschisis, my life changed forever that day but for the better.  more…

North Carolina

Crystal Printy

Hub Leader

[email protected]

Hi! I’m Crystal, your NC HUB Leader. As a parent and caregiver  of a Gastroschisis Warrior, I am here to offer my support to you and your family through the trials and triumphs of Gastroschisis life.

Nikki Billings

Hub Leader

[email protected]

My name is Nikki Billings and I am 22 years old. I’m married to the sweetest man of my dreams; his name is Dylan. I am currently attending Strayer University Online working towards my bachelors in Business Administration. more…

North Dakota

Hilary Balzum

Hub Leader

[email protected]

My name is Hilary Balzum and I reside in Bismarck, North Dakota with my wonderful husband (Brad), three children (Keagan, Aria and Elsa) and our fur baby (Princess Sofia Cookie Baby).  more…

Ohio

Lacey Hatten

Co-Hub Leader

[email protected]

My Gastroschisis journey started in September 2002 when my nephew Darion was born with Gastroschisis that was undetected during pregnancy. It shocked and rocked our family to the core. more…

Kristi Hlad

Co-Hub Leader

[email protected]

My name is Kristi Hlad, I am a co-hub leader for Ohio.  My husband and I have 3 beautiful boys, Christian, Connor and Carter (our Gastroschisis angel). Our journey started  in 2016 when we were expecting our Carter. more…

Erin Werner

Co-Hub Leader

[email protected]

My name is Erin Werner.  My son Leo was born on 1/30/14 with complicated gastroschisis.  Not only were his intestines out, but they were not all connected. In all, Leo had seven surgeries and spent 7 months and eleven days in the Cincinnati Children’s NICU. more…

Oklahoma

Rebecca Betts-pageRebecca Betts

Hub Leader

[email protected]

I found out in January of 2011 that I was pregnant with my 2nd child. In March we found out that we were having a daughter, and she  would be born with Gastroschisis. I went home and started to do some research about it, that’s when I came across Avery’s Angels Gastroschisis Foundation.  more…

Oregon

Tiffany GoldaderTiffany Goldader

Area Contact

tiffany@averysangels.org

My name is Tiffany. I am 28 years old, and a full time mom and wife. Having support, whether locally or across the world, is a key way we help people experiencing gastroschisis. more…

Pennsylvania

Toni Chester

Toni Chester

Hub Leader

[email protected]

Hi, my name is Toni and I am a proud mommy to two adorable toddlers. My oldest sons name is Lucas and he was born January 2012. My baby Wyatt was born April 2013 and he is our Gastroschisis Warrior. more…

Tennessee

Sarah Parker

Sarah Parker

Hub Leader

[email protected]

Sarah Parker’s son, Rowan, was born with Gastroschisis in June of 2009. He was born at 32 weeks and suffered a loss of 75% of his small intestines, leaving him with Short Bowel Syndrome.  more…

Eryn Baines

Eryn Baines

Hub Leader

[email protected]

I’m Sean’s mom, Eryn Baines. His story began when I was 13 weeks pregnant and found out he had Gastroschisis. I was terrified when my Dr. came in and told me that something wasn’t right with the ultrasound. more…

Texas

Brittany IshamBrittany Isham

Hub Leader

[email protected]

My name is Brittany Isham. I was 24 years old and 20 weeks pregnant with my second child, Savana, when she was diagnosed with gastroschisis. It was unexpected and I was not at all prepared to deal with my daughter having a birth defect, much less one I knew nothing about. more…

Jade Seastone

Hub Leader

[email protected]

My name is Jade Seastone and I am a full-time student and a mother of two beautiful girls Sara Grace and Harper Kennedy. My gastroschisis journey began unexpectedly when my daughter Harper was born June 22, 2015. I received one ultrasound during my pregnancy and was told everything was okay. more…

Sarah Estrada

Sarah EstradaCo-Coordinator

[email protected]

My name is Sarah Estrada and I have a sweet little boy that was born with gastroschisis. At our 22-week sonogram, we were excited to find out his gender, but were shocked only seconds later that he would be born with the defect and to expect a long NICU stay. more…

Virginia

Beth Wallace

Hub Leader

[email protected]

Our story began at 15 weeks with the voluntary quad screening test. I took the test and in just a couple of days I received a call to discuss the results. All I remember was “don’t worry there are a lot of false positives”. Unfortunately, that was not my case. more…

Washington

Carissa ShoemakerCarissa Shoemaker

Hub Leader

[email protected]

I am a full time working mama to 3 big girls Jaelyn, Khloe, and Liyah, our gastroschisis angel Emersyn, and our rainbow baby due in April 2015. Our Journey with gastroschisis has been a rough one. Emersyn had a very severe case with multiple organs out and no abdominal wall to put anything back in. more…

Linda Smith

Co-Hub Leader

[email protected]

Hi, my name is Linda Smith and I am a Gastroschisis Survivor. My mother found out at 12 weeks I would be born with the defect after it was confirmed by a specialist at the Children’s and Women’s Hospital in Mobile, Alabama. more…

Canada

Brittany DavidsonBrittany Davidson

Area Contact

For outreach, please contact [email protected]

Hi I’m Brittany Davidson, Canadian Hub Leader for AAGF. When I became pregnant with my daughter Emrie who was born with Gastroschisis, I felt so lost and alone. Avery’s Angels and everyone I met within it became a huge part of my life and my biggest support system. more…

South Africa

Jennifer Barnardo

Jennifer BarnardoArea Contact

For outreach, please contact [email protected]

My name is Jennifer Barnardo. I’m 28 years old, living in South Africa. I’ve been married for 10 years and am a mother of a Gastroschisis/Cerebral Palsy warrior named Owen Michael.  I have a high energy drive in every aspect of the work environment and am a natural people person. more…

United Kingdom

Rebekah Dean

Hub Leader

[email protected]

My name is Rebekah Dean and I live in Gloucester, England. I am a very proud mum of a handsome two year old little boy. Our gastroschisis journey began early in 2014 when my son was diagnosed with gastroschisis at my 12 week scan. more…